Thursday, January 13, 2011

Little by Little. Bit by Bit. Day by Day.

The title is a very accurate way to describe how I have felt since my surgery.  I feel like I'm getting my life back, little by little, bit by bit, day by day.

In October I got the stints taken out of my nose.  I was released from from the ENT in November, exactly 2 months after surgery.  I had an MRI and check up with Dr. Staner at the end of November and he was very, very happy with my MRI scans.  I don't have to see him until April.  Today I went for another post-op checkup with my endocrinologist.  My blood work came back "normal".  He say's he's highly impressed and that I'm nothing short of a miracle.  He has another Acromegaly patient that has already had surgery, that wasn't successful and the medications are not controlling his symptoms or hormone levels.  I feel bad for him.  But I've been released for a year.  One whole year.  What an amazing feeling.

Every day is new, different.  I have good days where I'm full of energy and can't wait to get things done.  But I also have days where I can barely drag myself out of bed long enough to go crash out on the couch.  Before I went back to work after my surgery, I lost my job.  Turned out to be a blessing.  I honestly don't know if I could hack working full time.   Days that I'm the most active, the next day is the day I'm the least.  I tire fast and take longer to recover.

One of the side effects of the Acromegaly is that I've gained weight.  A lot of it.  I gained almost 100 pounds in about a year.   Granted I ate poorly, didn't exercise or whatever.  But because of the Acromegaly, my body wasn't working right either.  It was trying to grow.  Even when I dieted and exercised, I would not lose nothing, or lose and put it right back on.  It was very very frustrating.

So.  Now that my doctor has confirmed that my body is done fighting me, done working against its own best interest, it is time for me to regain my body.  I will have to do this also little by little, bit by bit, day by day.  But in the end, I will do this.  I didn't survive brain tumor only to be miserable and fat!  This is just one more battle in the tumor fight, or more accurately, the clean up after the war.  Reconstruction!

I'll post a picture soon.  Four months post-op and I can see a difference finally.